Contact:  info@pkd-rrc.org

Data dictionary representing 501 harmonized PKD variables and accompanying data elements used for the multi-site registry derived from the three PKD-RRC sites. The data dictionary is formatted for, and ready for, import into REDCap, a secure web application for electronic data capture that is available for free and widely used by academic and other non-profit organizations worldwide. An accompanying guide provides metadata including more detailed description and explanation of each variable.

Please note: The Materials Transfer Agreement is not required for this request.